Our definition of hospice care. Every hospicde across the UK was funded to respond to the needs of the community it serves, and continues to develop in order to meet these changin needs.
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On the fronline 'My role can be very sad, but this is where I belong' What it is really like to work on the frontline in a hospice during Covid19. Staff at St Luke's Plymouth have written a piece for ehospice News about the reality.
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What is the right approach in end of life care and why is it important?
Read The important of human rights in end of life - ehospice
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Talking about dying isn't easy, but it matter. During this challenging year, it is important to talk about death, dying and bereavement, it is why @DyingMatter is SO important. Click here to be taken to the Dymatter website for their latest news and resources.
The ENDEMIC (dEmeNtia and DEcision MakIng during Covid19) research team at UCL, who have developed a guide to help carers of people with dementia who have COVID-19 to make decisions about care for their loved ones.
Development of the guide has been supported by Marie Curie, Alzheimer’s Society and Dementia UK. It is a free downloadable document (available here) that helps carers work through situations, medical and legal jargon so they can make informed decisions quickly under stressful circumstances. The press release can be seen here.
The pandemic has led to a strange paradox- on the one hand encouraging conversations on otherwise taboo subjects of death and dying while on the other hand, people who have lost someone to a cause other than the virus feel left out.
I have just read this very interesting and thought provoking article written by Beth French who has created a support network for people aged 18-35 who are bereaved. She has considered many aspects of loss and grief within this demographic who are maybe missing out on much needed support. Maybe you know someone who would benefit from her experience.
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And the people stayed home. And read books, and listened, and rested and exercised, and made art, and played games, and learned new ways of being, and were still. And listened more deeply. Some meditated, some prayed, some danced. Some met their shadows. And the people began to think differently.
And the people healed. And, in the absence of people living in ignorant, dangerous, mindless, and heartless ways, the earth began to heal.
And when the danger passed, and the people joined together again, they grieved their losses, and made new choices, and dreamed new images, and created new ways to live and heal the earth fully, as they had been healed.
Submitted by NAHH Trustee, Sally Taylor
At this exceptional time in the NHS, H@H carers will be caring for more patients and carers after a death has occurred. Many H@H carers are skilled and trained for this but there are others who are less experienced. This article is a guide to best practice at this time and can act as a check list that all is being done at this difficult time.
In these unprecedented times it is not only our physical health and wellbeing that will be challenged but our emotional one too.
This was on a Palliative Care site and was sent to me from a colleague. I thought how poignant it was. We are very generous with our emotional support but what happens when the fuel tank is showing nearly empty and onto the red. We can only be of help and support to others if we “care” for ourselves too. I am in no doubt that we are all feeling for each other now and in the future
Stay safe my friends across the country. Sally Taylor, Trustee and Vice Chair.”
Caring for those at end of life can cause stress to staff. This article offers discussion and support to nurses working alongside the dying within hospitals. Although hospital based, this will resonant with staff working in any area of end of life care. There are many points in this article that will create discussion and it also offers reflective exercises to enhance wellbeing.
Stumbling Towards Death: How do Canadians Die? Often not how or where they want
Author Jim Oldfield
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